Change of name for aHUS news
What does the internet have to say about news of change of name for aHUS? Global Action asked it, has the…
Out with old in with the new- not quite just yet
On the 10th anniversary of international aHUS awareness day it is timely to raise awareness that the old term aHUS is…
The 2024 Global aHUS Poll
The 2024 Global aHUS Poll was closed to further responses on 18th July. It had been open for 6 weeks and…
Social media and aHUS- Before aHUS endeavours fade
aHUS in the social media is now much more commonplace. In this latest article in the series “Before aHUS Endeavours Fade”…
Atypical HUS and PNH: better together?
The diseases PNH and aHUS, although different, share features in common. Both are very rare, both are the result of uncontrolled…
aHUS awareness day and aHUS alliance Global Action
Introduction Atypical Hemolytic Uremic Syndrome (aHUS) is a rare, life-threatening disease that remains largely unfamiliar to the general public and even…
AN aHUS PATIENT’S TREATMENT DISCONTINUATION MODEL
Without any further comment here is the model mentioned in the previous article ( which if you have not already seen…
TO STOP OR NOT TO STOP – THAT IS THE QUESTION?
You have had aHUS. The type of aHUS caused by uncontrolled complement, not the other type. You got access to a…
The KDIGO “aHUS” Guidelines have arrived
The long anticipated KDIGO Guidelines from the Controversies Conference held in Florence in September 2022 are now published. The report can…
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