Atypical HUS Facts: 2025 -Sept- 2026
2025 – SEPT – 2026 Atypical HUS: Fact Sheet Atypical Hemolytic Uremic Syndrome – a Rare Disease Information and medical…
More countries becoming neighbours in Global aHUS Town
Hiding in plain sight were neighbours Republic of Ireland and Iceland. The south of Ireland is well known as the place…
Thrombomodulin and TMA- complement inhibition or not?
It is said that thrombomodulin, or TM (AKA THBD) ,or CD141, plays only an indirect part in TMA (thrombotic microangiopathy) .…
More is known about Epysqli these days
The drug Epysqli or the version of eculizumab known as eculizumab-aagh has been available in some countries since 2024 . Although…
Health economics and stopping eculizumab treatment safely
A second article in a series of four planned has just been published. It is about the health economics of treatment…
aHUS is an autoimmune disease?
So aHUS is an autoimmune disease? Well actually not but depending on the definition of aHUS there can be an autoimmune…
aHUS Awareness Day
aHUS AWARENESS DAY 24 September – an annual day to highlight the issues, challenges, and remarkable individuals within the aHUS community…
Welcoming another country to the “Global aHUS Town”
In the ever-evolving world of rare disease advocacy, each milestone marks not just progress, but hope. Today, hope takes on a…
Fairy Tale on the island of Camp-le-mont
Once upon a time, far away in the middle of a sparkling sea, there was a magical island called Camp-le-mont. Some…
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