Coronavirus remains a Concern in 2025
It’s largely wishful thinking that an illness can become ‘extinct’ across the human population, as evidenced by the resurgence of diseases…
Coronavirus remains a Concern in 2025
It’s largely wishful thinking that an illness can become ‘extinct’ across the human population, as evidenced by the resurgence of diseases…
Informação Salva Vidas – SHUa
Informação Salva Vidas - SHUa A informação para pacientes brasileiros com SHUa era quase tão rara quanto a própria doença, mas…
India: Eculizumab Approved by CDSCO for aHUS & PNH
After years of waiting, eculizumab Soliris(R) has been approved by India’s Central Drugs Standard Control Organisation (CDSCO) as an approved drug…
Modifying the name for aHUS- a to do list?
The medical community may not agree on everything but all agree on modifying the disease name aHUS.. A report published in…
FDA has a record about aHUS
In 2023 a group from the aHUS community met with the FDA to talk to them about living with aHUS and…
Discontinuation – no longer needing complement inhibition
Complement inhibition treatment discontinuation is a topic that Global Action has led on in the aHUS patient advocacy world for several…
RDD25: MORE THAN YOU CAN IMAGINE!
It will be Rare Disease Day on 28th February 2025. A day to raise awareness of rare diseases generally and also…
Is a patient organisation still needed for aHUS?
As another year turns in the aHUS world it is perhaps a time to reflect once more on the mission of…
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