Atypical HUS is a very rare and complex disease. We thank those who collaborate on global aHUS research efforts, and extend our gratitude to the physicians and groups who partner with patient organizations and international aHUS advocacy efforts.
We recognize with special appreciation these clinicians and aHUS investigators who connect with our aHUS Alliance Global Action team, and thank them for acting as a connecting point to advance aHUS research in practice.
Note to Patients & Caregivers: We’re pleased to support your healthcare with this global ‘Doc to Doc’ directory, which provides your medical team with expertise to consult on complex care of people diagnosed with atypical HUS (or a suspected diagnosis of aHUS). If you are a patient or aHUS caregiver, please contact your own medical team if you wish them to reach out to these experts. This network was created so that physicians worldwide may reach out for medical consultation regarding aHUS diagnosis and management.
Gianluigi Ardissino MD, Ph.D
Director of the Center for HUS Prevention, Control and Management
Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico
Milan
ITALY
E: ardissino@centroseu.org
Arvind Bagga MD, FAMS, FIAP, FISN
Professor of Pediatrics
ICMR Center for Advanced Research in Nephrology
All India Institute of Medical Sciences
New Delhi 110029
INDIA
Tel. +91-11-26593472, +91-9810590809
E: arvindbagga@hotmail.com
Richard Burwick, MD, MPH
Associate Professor of Maternal Fetal Medicine
San Gabriel Valley Perinatal Medical Group
Pomona Valley Hospital Medical Center
Pomona, CA
United States
Tel: +1 909-865-9705
E: richard.burwick@pvhmc.org
Spero Cataland, MD
Associate Professor of Clinical Internal Medicine, Hematology
The James Cancer Hospital and Solove Research Institute
460 West 10th Avenue Columbus, Ohio 43210
UNITED STATES
Tel. (614) 293-9441
E: Spero.Cataland@osumc.edu
Shruti Chaturvedi, M.B.B.S., M.S.
Associate Professor of Medicine
The Johns Hopkins Hospital (Main Entrance)
1800 Orleans St., Sheikh Zayed Tower
Baltimore, MD 21287
UNITED STATES
Tel. (410) 502-6686
E: schatur3@jhmi.edu
Nathan T Connell MD, M.P.H.
Assistant Professor of Medicine, Harvard Medical School
Hematology Division, Brigham and Women’s Hospital
75 Francis Street, Boston, MA 02115
UNITED STATES
Tel: 617-732-5190 Fax: 617-732-5706
Fadi Fakhouri, MD, PhD
Professor of Nephrology
Department of Nephrology
CHUV Lausanne
Switzerland
E: fadi.fakhouri@unil.ch
Johannes Hofer, MD
Pediatric Nephrology and Neurology
Institute of Neurology of Senses and Language,
Hospital of St John of God, Linz, Austria
Research collaboration with Medical University Innsbruck,
Department of Pediatrics I, Innsbruck, Austria
AUSTRIA
E: johannes.hofer@bblinz.at
Maria Izabel de Holanda, MD, PhD
Staff Nephrologist
Nephrology Fellowship Program Coordinator
Department of Nephrology and Kidney Transplant
Hospital Federal de Bonsucesso
Av.londres 616, prédio 1, nefrologia
Rio de Janeiro- Brazil
BRAZIL
Tel. +55 21 39779636 or + 55 21 999072244
E: izabeldeholanda@gmail.com
Diana Karpman, MD PhD
Professor of Pediatrics
Lund University
SWEDEN
Tel: +46-46-2220747. Cell phone: +46-706-654947
E: diana.karpman@med.lu.se
David Kavanagh FRCP PhD
Professor of Complement Therapeutics
Honorary Consultant Nephrologist
National Renal Complement Therapeutics Centre
aHUS Service, Building 26
Royal Victoria Infirmary
Queen Victoria Road
Newcastle upon Tyne
NE1 4LP
ENGLAND
Tel: NRCTC Direct Line +44 191 282 0385
E: NRCTC atypical.hus@nhs.net
www.atypicalhus.co.uk
Mathieu Lemaire MSc, MDCM, PhD
Staff Nephrologist, The Hospital for Sick Children
Scientist-track Investigator, Cell Biology, Sick Kids Research Institute
Asst. Professor, Paediatrics, University of Toronto
Toronto, Canada
The Hospital for Sick Children
555 University Avenue
Toronto, ON, M5G 1X8
CANADA
Tel: (416) 813-7654 ext. 309419
E: mathieu.lemaire@sickkids.ca
Tanja Kersnik Levart, MD, PhD
Professor of Paediatrics
Head of Division of Nephrology, Dialysis and Transplantation at the Paediatric Clinic
University Medical Centre Ljubljana
Bohoričeva 20
1000 Ljubljana
SLOVENIA
Tel. +386 1 522 71 45 Fax: +386 1 522 96 20
E: tanja.kersnik@guest.arnes.si
Christoph Licht MD, FRCPC, FASN
Professor of Paediatrics
Staff Nephrologist and
Director, Dialysis & Apheresis Program
Division of Nephrology
Senior Associate Scientist
Cell Biology Program
The Hospital for Sick Children
555 University Avenue
Toronto, ON, M5G 1X8 CANADA
Tel. +1 416 813 309343 Fax. +1 416 813 6271
Email: christoph.licht@sickkids.ca
Adrian Catalin Lungu MD
Paediatric Nephrology
Bucharest, Romania
ROMANIA
Tel: +40 722 131950
E: adilungu@mediakompass.ro
Yaeko Motoyoshi MD, PhD
Department of Pediatrics, Graduate Medical School
Tokyo Medical and Dental University
JAPAN
E: ymoped@tmd.ac.jp
Carla M. Nester MD, MSA
University of Iowa
Adult and Pediatric Nephrology
U of Iowa Heath Care
Tel. (319) 356-1616
Iowa City, Iowa
UNITED STATES
Tel. (319) 356-7249 Fax. (319) 384-9616
E: carla-nester@uiowa.edu
Fatih Ozaltin M.D.
Assoc. Professor of Pediatrics and Pediatric Nephrology
Head, Nephrogenetics Laboratory
Hacettepe University Faculty of Medicine
06100, Sıhhiye, Ankara
TURKEY
E: fozaltin@hacettepe.edu.tr ozaltinf@gmail.com
Zoltán Prohászka MD, PhD
Professor of Immunology and Director,
Füst György Complement Diagnostic Laboratory
3rd Department of Medicine, Research Laboratory,
Semmelweis University, Budapest, Hungary
HUNGARY
Tel. +361-3251379
E: prohaszka.zoltan@med.semmelweis-univ.hu
Rupesh Raina MD
Director of Medical Research, Internal Medicine
Akron General Medical Center
Pediatric Nephrologist
Akron Children’s Hospital, Nephrology & Pediatric Hypertension Center
1 Perkins Square
Akron, OH, 44308
UNITED STATES
Tel. 330-543-8950
Email: RRaina@akronchildrens.org
Giuseppe Remuzzi, MD, FRCP,
Director, Clinical Research Center for Rare Diseases “Also e Cele Daccò”
Istituto di Ricerche Farmacologiche Mario Negri IRCCS
Via Camozzi, 3
24020 Ranica
Bergamo ITALY
Web site: www.marionegri.it Registry: International Registry of HUS/TTP
E: giuseppe.remuzzi@marionegri.it
Prof George Reusz MD, PhD, ScD
First Department of Pediatrics,
Division of Clinical Nephrology and Dialysis
Semmelweis University, Budapest, Hungary
HUNGARY ,
Tel. +361-3247795
E: reuszgs@gmail.com
Andrew M. Siedlecki MD
Brigham and Women’s Hospital
Division of Renal Medicine, Transplant Section
Harvard Medical School
Boston, MA
UNITED STATES
Tel: 1-314-809-2879
E: asiedlecki@bwh.harvard.edu
Brankica Spasojevic-Dimitrijeva
Senior Consultant Pediatric Nephrologist
Clinical Assistant in Pediatrics
University of Belgrade, School of Medicine
University Children’s Hospital
Nephrology Department
Tirsova 10, 11000, Belgrade
SERBIA
Tel. +381 112060765 (office) +381 63 86 34 568 (cell)
E: brankica.spasojevic@udk.bg.ac.rs brankicaspasojevic@yahoo.com
Natasa Stajic MD
Pediatric Nephrologist
Institute of Mother and Child Health Care “Dr Vukan Cupic”
Radoja Dakica 11070
Belgrade SERBIA
also: Macedonia, Kosovo, Montenegro and, Bosnia and Hertzegovina
Tel No. +38164 284 6808
E : natalijast2003@yahoo.com
Constantinos J. Stefanidis MD, PhD.
Head of Pediatric Nephrology
Mitera Children’s Hospital
Athens, Greece
GREECE
Tel: 0030694447000
E: cjstefanidis@gmail.com
Prof. Maria Szczepańska MD, PhD
Department of Pediatrics,
Department of Pediatric Nephrology with
Pediatric Dialysis Unit
Independent Public Clinical Hospital No 1
Silesian Medical University in Katowice
Address: ul. 3 Maja 13-15, 41 – 800 Zabrze
POLAND
Tel., fax 32 3704 292 Tel. 32 37 04 305
E: dializy_dzieciece_zabrze@poczta.onet.pl
Velibor Tasic, MD, PhD
Professor in Pediatrics and Pediatric Nephrology
Senior Consultant Pediatric Nephrologist
Head of the Department
University Children’s Hospital,
Medical School Skopje
17 Vodnjanska, 1000 Skopje
MACEDONIA
Tel. +389-2-3147721 (office) +389-75-789105 (cell)
E: vtasic2003@gmail.com
Rezan Topaloglu MD
Professor of Pediatrics and Pediatric Nephrology
Head, Department of Pediatric Nephrology
Hacettepe University Faculty of Medicine
06100 Ankara Turkey
TURKEY
E: rezantopaloglu@hacettepe.edu.tr
Nicole CAJ van de Kar MD, PhD
Pediatric Nephrologist
Department of Pediatric Nephrology
Radboudumc Amalia Children’s Hospital
P.O.Box 9101, 6500 HB Nijmegen, The Netherlands
Geert Grooteplein Zuid 10, 6525 GA Nijmegen, the Netherlands (route 804)
www.radboudumc.nl
Tel: +31 (0)24-3614430
E: Nicole.vandeKar@radboudumc.nl
Prof. Aleksandra Żurowska
Department of Pediatric and Adolescent Nephrology & Hypertension
University Clinical Center
Medical University of Gdansk
Address: Dębinki 7, 80-952 Gdańsk , Poland
POLAND
Tel. +48 58 349 28 50 Fax. +48 58 349 28 52
E: azur@gumed.edu.pl
Please contact us at
info@aHUSallianceAction.org for questions or inquiries.
Related Article about aHUS Research & Clinical Centers:
Information and Links: aHUS Alliance Article (2018)
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