The B of the aHUS Bang ends the Rare Disease Day Video
Rares of Romania asked the question " How can I understand in simple words what is happening in my body during this…
Thrombotic Microangiopathy Symposium in Boston – 24 Aug 2017
Thrombotic Microangiopathy Symposium: Through the Lens of aHUS 24 August 2017 in Boston Post-Event Update: LIVE BLOG: At…
Thinking aHUS gets there in the end
Like many with rare diseases getting a diagnosis is a major issue for aHUS patients. Although it is much speedier than…
aHUS alliance website one year on
The aHUS alliance website has reached its first anniversary. Although some of the first blogs have dates preceding 28 May 2016…
Skin & Atypical HUS: Thrombotic Microangiopathy in aHUS
Skin involvement and thrombotic microangipathy: a consideration for atypical HUS patient care.
aHUS Patient Care – the Need for Multidisciplinary Collaboration
Patients make appointments to see their primary care physician when a health issue arises, but often more complex cases merit…
Is it aHUS? Perhaps it’s TTP, STEC-HUS, or Another TMA
Feeling sick is difficult enough without going to a doctor’s appointment and learning that the diagnosis might possibly be the…
Vision Issues & aHUS
It’s difficult for rare disease patients to find information about their condition and even more so for patients with medical…
aHUS & Pregnancy: Questions, Concerns, and Research
UPDATED April 2019: New Research View the video about aHUS & Pregnancy Dr Craig Gordon on the topic of Pregnancy…
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