Bucharest – Nephrology Course, Nov 17-18: IPNA & SEPNWG
International Nephrology Conference in BUCHAREST, Romania 17 & 18 Nov 2017 In the 1st conference of this type…
Atypical HUS Facts – 2017 aHUS Alliance Fact Sheets
Looking for the latest 2017 facts and key research about the rare disease atypical hemolytic uremic syndrome (aHUS)? You’ve found…
Thinking More About aHUS Today.
So aHUS is a genetic disease caused by the aHUS gene. Many people talk about "the aHUS gene" as though it…
Videos about aHUS which make you think differently
Last month the aHUS alliance in partnership with Andrew Siedlecki , the USA National Coordinator for the aHUS Registry and other…
aHUS Clinicians & Investigators
Atypical HUS is a very rare and complex disease. We thank those who collaborate on global aHUS research efforts, and extend…
AGENDA for TMA & aHUS Symposium in Boston 24 Aug 2017
Post-Event Update: Presentations were videotaped, and appear on YouTube on the aHUS Alliance Atypical HUS Clinical Channel .…
The B of the aHUS Bang ends the Rare Disease Day Video
Rares of Romania asked the question " How can I understand in simple words what is happening in my body during this…
Thrombotic Microangiopathy Symposium in Boston – 24 Aug 2017
Thrombotic Microangiopathy Symposium: Through the Lens of aHUS 24 August 2017 in Boston Post-Event Update: LIVE BLOG: At…
Thinking aHUS gets there in the end
Like many with rare diseases getting a diagnosis is a major issue for aHUS patients. Although it is much speedier than…