Numbers of aHUS patients
The aHUS patient community asked in its research agenda what are the numbers of aHUS patients. Global Action has written about…
Mental health aHUS Day video- insights
The video for aHUS awareness day 2024 was about mental health and having aHUS. Global Action has looked again at it…
Change of name for aHUS news
What does the internet have to say about news of change of name for aHUS? Global Action asked it, has the…
7 days or less is a rapid aHUS diagnosis
A rapid diagnosis of aHUS in 7 days or less usually results in the patient having the best of health outcomes…
AIRG Suisse: Their aHUS Survey
Our aHUS Alliance Global Action team takes to heart our mission to “Inform. Connect. Collaborate” on ideas and initiatives across all…
Why the kidney – blame the complosome?
Intracellular complement, or “complosome,” refers to the complement system’s activity within cells, a discovery that has significantly expanded the understanding of…
The first ever aHUS research study patient cohort
The Global Action website has been featuring the pioneers and first events of aHUS history in its series Before aHUS Endeavours…
Social media and aHUS- Before aHUS endeavours fade
aHUS in the social media is now much more commonplace. In this latest article in the series “Before aHUS Endeavours Fade”…
aHUS awareness day and aHUS alliance Global Action
Introduction Atypical Hemolytic Uremic Syndrome (aHUS) is a rare, life-threatening disease that remains largely unfamiliar to the general public and even…