What the RDD24 aHUS video tells us.
The Steven Spielberg of aHUS videos (Jeff) has produce another aHUS video for RDD24. Sixty six aHUS patients /carers starred in…
The Steven Spielberg of aHUS videos (Jeff) has produce another aHUS video for RDD24. Sixty six aHUS patients /carers starred in…
When this review of the aHUS patients research agenda began, the question was asked "is a patient research agenda worth while?".…
During December and January last, there has been a review of each of the 15 topics in the patients research agenda.…
aHUS epidemiology is the about how many aHUS patients there are. The numbers onsetting and surviving. It’s “Incidence” and “prevalence”. How…
Pregnancy is a common trigger of aHUS, this can impact on someone who is predisposed or related to someone predisposed to…
An illness like aHUS can have an impact on a normal active life during the acute stage of the illness and…
Mental health is an extensive issue of modern times focusing on depression and anxieties. The inverse of depression is self-esteem how…
Although people’s experiences differ both treatment and long term effects of aHUS can be detected by patients. Patients have asked :…
aHUS patient Jaac and his mother Ria are from the UK. Ria spoke to Global Action about her son’s meningococcal infection…