Research & Education: Keys to aHUS Answers
Especially with very rare diseases such as atypical HUS, medical research and education efforts are keys to unlocking information that’s critical…
Vision Issues & aHUS
It’s difficult for rare disease patients to find information about their condition and even more so for patients with medical…
Images for Rare Disease Day
Below are some aHUS Alliance images for Rare Disease Day, please visit our social media for a comprehensive array of current graphics.
aHUS Diagnosis & Treatment – KDIGO Controversy Conference
The KDIGO Controversies Conference on Complement-Mediated Kidney Disease was held November 19-21 2015 in Barcelona Spain. KDIGO’s mission is to…
Rare Disease Caregivers
Some countries use the term ‘carer’, while other nations prefer the word ‘caregiver’ to describe those individuals who fill the…
aHUS alliance video for aHUS Awareness Day 2016
Use the following link to see the work of aHUS patients, parents and carers from 17 countries around the world on…
Patient Engagement: A Reality or Merely Buzzwords?
Patients both desire and need to be involved at every level of their healthcare. Within the last decade there’s…
Social Media and aHUS
No one can describe the aHUS journey better than atypical HUS patients and their caregivers, and who better to globally frame…
aHUS Voice in 2016
2016 aHUS Global Poll - Results aHUS Patient Global Voice In a multi-national collaboration of aHUS patient organizations around the world,…
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