aHUS Awareness Day: 24 September 2017
The aHUS Alliance, an international group of atypical HUS patient organizations and global advocates, announces its 3rd annual worldwide aHUS…
Perspectives in aHUS – Creating Opportunities & Meeting Challenges – Kamal D. Shah of India
Atypical HUS - Perspectives: An ongoing series from the aHUS Alliance that features varied views, people, advocacy, organizations, or efforts that can provide deeper understanding and insights into this rare disease.
Genetic tests – to know or not?
Genetics is very important to aHUS patients. aHUS is a very rare genetic diseases. aHUS patients get to know and understand…
Sleep Disturbances and Chronic Kidney Disease
Many people with chronic kidney disease experience sleep disturbances, apparently affecting patients of all ages and many clinical subtypes. Here we present a curated list of information about sleep disorders and kidney disease, providing excerpts to provide an overview of how sleep disorders may have potential to impact atypical HUS patients of various ages and with varied health histories.
Research & Education: Keys to aHUS Answers
Especially with very rare diseases such as atypical HUS, medical research and education efforts are keys to unlocking information that’s critical…
Vision Issues & aHUS
It’s difficult for rare disease patients to find information about their condition and even more so for patients with medical…
Images for Rare Disease Day
Below are some aHUS Alliance images for Rare Disease Day, please visit our social media for a comprehensive array of current graphics.
aHUS Diagnosis & Treatment – KDIGO Controversy Conference
The KDIGO Controversies Conference on Complement-Mediated Kidney Disease was held November 19-21 2015 in Barcelona Spain. KDIGO’s mission is to…
Rare Disease Caregivers
Some countries use the term ‘carer’, while other nations prefer the word ‘caregiver’ to describe those individuals who fill the…