Being An aHUS Trialist
Article No. 419 16 February 2021 It is spring time in 2017. You feel very unwell, very poorly. It is thought…
Follow up on aHUS/COVID19 JAbs Follow Up
Article No. 414 28 January 2021 A further update on the issue of aHUS and COVID 19 vaccinations from the author’s…
BB5.1 aHUS connection to c.3643C>G; p. Arg1215Gly
Article No 413 23 January 2021 Very few people have heard of BB5.1 nor even c.3643C>G; p. Arg1215Gly. Yet both are of…
aHUS Diagnosis Process tremendous response
Article No 412 21 January 2021 The 19th January 2021 has passed and the aHUS Diagnosis Process Study Questionnaire has now…
aHUS in pregnancy and after
Article No 410 13 January 2021 The link between pregnancy and aHUS has been known for several decades. A chapter was…
Help needed to join the aHUS dots
Article No 395 25 November 2020 This was a call to action to the Global aHUS community.( Results to come) It…
The aHUS Diagnosis Process
Article No 389 27 October 2020 A process is a series of steps. Diagnosis is a process. A medical diagnosis is…
SHUa en Belgique
Article No. 346 27 May 2020 Suite à une nouvelle récente (lire ici) sur les réponses aux réponses à la question …
Eculizumab- safe or not?
aHUS patients and carers raised the research topic : "Can the side effects of treatment using a complement inhibitor be distinguished…
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