YOU’VE GOT aHUS!
The third article in the series about the aHUS Diagnosis Process is published today. Rare Disease Day 2022 The article covers…
The third article in the series about the aHUS Diagnosis Process is published today. Rare Disease Day 2022 The article covers…
Si vous désirez vous informer et aller plus loin dans la connaissance de cette maladie rare, nous vous invitons à lire…
Last summer, aHUS alliance’s Twitter Account featured the plight of a patient who, after a week in hospital, had been found…
As the year ends we are still living with COVID. It seems like it is never ending. And it is and…
If asked by health policy decision makers, and with a 500 words limit, how would you answer the question "how does…
OK, so HUS is caused by e.coli toxins and aHUS results from Complement dysregulation. Both are thrombotic microangiopathies. HUS is…
The portrayal of rare diseases in the media can be both positive and detrimental. It can be sensational and political. It…
In the weeks leading up to aHUS awareness day an announcement was made which did not get the attention it perhaps…
Ravulizumab is becoming a treatment of choice for aHUS in countries where access is funded. Though eculizumab will still have a…