Evaluating ravulizumab for aHUS treatment
Article No. 442 23 June 2021 Today NICE ( The National Institute for Health and Care Excellence) concluded its evaluation of…
aHUS Trial Watch 12 (crovalimab update)
Article No. 432 7 May 2021 In the past week or so, the possible trial of a new technology for treating…
aHUS and COVID 19 Vaccine Update Update
Article No. 424 19 March 2021 COVID 19 vaccine supplies are being hampered around the world because of uncertainty about a…
aHUS uncertainty is a certainty
Article No. 423 16 March 2021 Update: Seven days after this news blog was published a further report on the ravulizumab…
Being An aHUS Trialist
Article No. 419 16 February 2021 It is spring time in 2017. You feel very unwell, very poorly. It is thought…
Follow up on aHUS/COVID19 JAbs Follow Up
Article No. 414 28 January 2021 A further update on the issue of aHUS and COVID 19 vaccinations from the author’s…
BB5.1 aHUS connection to c.3643C>G; p. Arg1215Gly
Article No 413 23 January 2021 Very few people have heard of BB5.1 nor even c.3643C>G; p. Arg1215Gly. Yet both are of…
aHUS Diagnosis Process tremendous response
Article No 412 21 January 2021 The 19th January 2021 has passed and the aHUS Diagnosis Process Study Questionnaire has now…
aHUS in pregnancy and after
Article No 410 13 January 2021 The link between pregnancy and aHUS has been known for several decades. A chapter was…
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