Screening for aHUS at birth
Most babies are born healthy. Even those susceptible to aHUS due to genetic abnormalities are born healthy. Although it is rare,…
Can aHUS relapse in pregnancy?
Pregnancy is an important topic and has featured a lot on this website. Quite a few questions about it in the…
Strokes, DGKE , Sports & Recreation and aHUS questions
Three questions in the RDD22 video are each very specific but reflect the diverse impact of having had aHUS. Firstly one…
Questions about aHUS triggers
It is known that certain rare genetic variants, mutations, or markers, in components of the Complement System make some people susceptible…
Incomplete aHUS penetrance in families
Although aHUS has genetic causes, in the majority of cases it is found that the patient is the only one in…
Monitoring after Eculizumab withdrawal
This article marks the 500th website news “blog” since it went live nearly six years ago. That milestone is marked by…
Hormones and aHUS
Questions about hormones and aHUS in the RDD2022 video. It is a feature of aHUS that it becomes more common in…
Autoantibodies cause aHUS
Another question from the RDD2022 video. This one from Harry in Hartlepool UK. This one is about anti factor h autoantibodies.…
When to transition from eculizumab to ravulizumab
Ravulizumab is eculizumab, Carsten. They work the same way. It is the same monoclonal antibody. It has just been modified in…
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