Difference in aHUSs
This question about difference in disease triggers and treatments from Jeff did not feature in the RDD2022 video but was given…
Future effects of aHUS and its treatment
A number of questions in the RDD2022 video are about what will happen to patients in the future due to the…
aHUS care pathway
The care pathway for aHUS patients has been looked at in detail in Global Action’s Diagnosis Process Study ( for reports…
aHUS limitations
Zinovieva asked two related questions in the RDD 2020 video The issues of what provokes ( or triggers) the development of…
Side effects of ravulizimab between infusions
Ravulizumab is more widely used these days, particularly in the PNH community. Apart from the longer infusion intervals PNH patients benefit…
Can an unknown aHUS susceptibility be passed on?
Usually inheritance questions about a HUS relate to genetic susceptibility mutations/variants/markers that are known. This one is different because it is…
What about aHUS and COVID Vaccinations and access to genetic testing and genetic research
There was one question about COVID vaccinations and aHUS in the RDD2022 Video, Global Action featured several articles about COVID vaccination…
aHUS survival and social support
The RDD2022 Video question by Heitor may be one which is not specific to aHUS, . It raises issues, which are…
Screening for aHUS at birth
Most babies are born healthy. Even those susceptible to aHUS due to genetic abnormalities are born healthy. Although it is rare,…
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