Before aHUS endeavours fade
There have been moments and events in the past where someone whose endeavours make a significant difference for those who have…
There have been moments and events in the past where someone whose endeavours make a significant difference for those who have…
Hey GA tell me why aHUS for them and not me? Oh hi again. Who is them?Some of my family they…
In the past this website featured a series of blogs which covered the story of a patient advocacy organisation in the…
Global Action will be attending the Foundation’s Baltimore aHUS patients conference from the 28th to the 30th April. Here you will…
Over the past 10 years the movement of involvement of patients in the development of medicines, their regulation and use has…
In March each year the nephrology community, supported by the American Journal of Kidney Disease, engages in an educational initiative called…
All aHUS patients know that when on complement inhibitor treatment they are at risk of meningococcal infection. Do they? Of course,…
WWW.AHUSALLIANCEGLOBALACTION.ORG 18 March 2023 aHUS PATIENTS' VIEWS ON THE ATTRIBUTION OF ADVERSE EVENTS /SIDE EFFECTS EXPERIENCED DUE TO EITHER THEIR PRIMARY…
Zoom has helped with keeping aHUS advocacy going during the restrictions resulting from the COVID pandemic. Starting a zoom meeting always…