Modifying the name for aHUS- a to do list?
The medical community may not agree on everything but all agree on modifying the disease name aHUS.. A report published in…
FDA has a record about aHUS
In 2023 a group from the aHUS community met with the FDA to talk to them about living with aHUS and…
Discontinuation – no longer needing complement inhibition
Complement inhibition treatment discontinuation is a topic that Global Action has led on in the aHUS patient advocacy world for several…
RDD25: MORE THAN YOU CAN IMAGINE!
It will be Rare Disease Day on 28th February 2025. A day to raise awareness of rare diseases generally and also…
It’s ChristmaHUS
Try the ChristmaHUS Quiz and when you finish join in with the aHUS Christmas Carol. Here’s a 20-question multiple-choice quiz on…
Página em Português da Comunidade de SHUa
Artigo Convidado: Pamela Notario Guest Article: by Pamela Notario (English Version below Portuguese Version) É com grande alegria que lançamos a…
Treatment Discontinuation- do doctors and patients think alike?
Recently a novel article about complement inhibitor treatment discontinuation was published. Novel because of the research method used to produce its…
aHUS etc dip into ASH 2024
Some of the latest aHUS, CM-TMA and TMA research being displayed at the American Society of Haematologists , ASH, conference 2024…
COMPLOSOME : SOMETHING ”NEW” ABOUT COMPLEMENT
Hi GA (Global Action) tell me something new about complement. Hi again. The Complosome. The “COM PLO SOAM” what is that?…
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