Recruiting to aHUS Trials is not easy
Hey Global aHUS alliance. Hi, but its aHUS alliance Global Action actually Whatever, let's settle on GA. Well we have been…
Atypical HUS Research: NOV 2022 New Additions
There are important publications about atypical HUS which people might miss given that key search terms may scan but miss the…
aHUS Drug Candidates – the 2022 Landscape
What’s new in 2022 regarding expansion in atypical HUS knowledge, and advancements for investigational drugs which may have potential as new…
Topics in aHUS Research – Sept 2022
Atypical HUS patients and family caregivers are direct consumers of medical information and research, as we have a vested interest in…
Accessible to all: aHUS Research
Atypical HUS Research, view over 900 aHUS-specific publications categorized by topic, compiled by the aHUS Alliance Global Action team.
Long term aHUS effects
Long term aHUS disease, diagnosis and treatment legacies on both physical and mental health have featured in two aHUS Patient Research…
YOU’VE GOT aHUS!
The third article in the series about the aHUS Diagnosis Process is published today. Rare Disease Day 2022 The article covers…
aHUS Trial Watch 14
A trial has been designed by Alexion to examine the efficacy of Ravulizumab to treat those with a Thrombotic Microngiopathy ,…
Atypical HUS Research: What’s New OCT 2021
We marked aHUS Awareness Day (24 Sept) with our own advocacy-based research, releasing the 1st report of data and insights from…