aHUS Relapse: Expect the Unexpected
Atypical HUS Relapse: A Family View. Second in a 3-part series about how one family experienced the challenges of having this rare disease recur after many years 'off treatment.
Being An aHUS Trialist
Article No. 419 16 February 2021 It is spring time in 2017. You feel very unwell, very poorly. It is thought…
TMA-Semantics are important
Article No. 402 12 December 2020 Just over a year ago aHUS Global Action featured a series of articles "aHUS is…
Ravulizumab costs less over a life time
Article No 394 23 November 2020 In an article on 16 October 2020 (No 388) aHUS Global Action derived a cost…
Is Ravulizumab affordable for aHUS?
Article 388 16 October 2020 aHUS patients envisage a treatment that is affordable for all one day. That will be a…
aHUS transplants simplified
Article No. 387 13 October 2020 This website has featured several articles* about the topic of aHUS Transplants and their need…
Access to eculizumab
Article No. 375 6 September 2020 Earlier this year, aHUS alliance Global Action wrote to a number of contacts it has…
2020 Atypical Drug Discovery Review, released by the aHUS Alliance
2020 overview of atypical HUS therapeutic drug development, by the aHUS Alliance