Rare Disease Caregivers
Some countries use the term ‘carer’, while other nations prefer the word ‘caregiver’ to describe those individuals who fill the…
Some countries use the term ‘carer’, while other nations prefer the word ‘caregiver’ to describe those individuals who fill the…
Use the following link to see the work of aHUS patients, parents and carers from 17 countries around the world on…
No one can describe the aHUS journey better than atypical HUS patients and their caregivers, and who better to globally frame…
2016 aHUS Global Poll - Results aHUS Patient Global Voice In a multi-national collaboration of aHUS patient organizations around the world,…