Why aHUS for them not me?
Hey GA tell me why aHUS for them and not me? Oh hi again. Who is them?Some of my family they…
RDD23 VIDEO – RESULTS REPORT
WWW.AHUSALLIANCEGLOBALACTION.ORG 18 March 2023 aHUS PATIENTS' VIEWS ON THE ATTRIBUTION OF ADVERSE EVENTS /SIDE EFFECTS EXPERIENCED DUE TO EITHER THEIR PRIMARY…
Is incidence of aHUS really “2 per million”?
I know it should not matter so much but whenever I see incidence and prevalence figures for aHUS in articles etc,…
aHUS what is really happening?
Listening to some aHUS people on social media there is a sense that all are not satisfied with what is happening…
aHUS adverse events and patient reported outcomes
aHUS patients in clinical trials are monitored for adverse events and personal outcomes experience while on treatment. Adverse events have been…
Kamal is an aHUS Super Hero
Kamal Shah is a Director/Trustee of aHUS alliance Global Action. He first had aHUS over 25 years ago. It was triggered…
NEW ZEALAND
“De Novo” aHUS is bad luck
It has been known for decades that what is called " de novo " aHUS can happen to a kidney donor…
A Community Advisory Board for aHUS
Today it can be announced that a Global aHUS Community Advisory Board (CAB) has been formed. What is a Community Advisory…
An aHUS diagnosis, lucky or what?
It is hard to believe that it will soon be two years since the aHUS Diagnosis Process project began. It began…