Global Poll for aHUS – Progress Report
Last Summer nearly three hundred aHUS people from around the world participated in the 2024 Global Poll. They filled in a…
Last Summer nearly three hundred aHUS people from around the world participated in the 2024 Global Poll. They filled in a…
A few days ago an article appeared in The Lancet which claims to be the largest real world analysis of complement…
The Primary aHUS community now understands that there is no accurate record of how many "aHUS" patients there are , but…
aHUS patients have been deliberately not engaged in the proposal to change the name aHUS into a plethora of thrombotic microangiopathy…
The disease now called Primary aHUS has existed as long as humans had complement and coagulation systems. Dinosaurs might have had…
Remember in the COVID years of 2020 and 2021 the media was plastered with COVID patient numbers. They were ubiquitous and…
This is what Grok AI says about aHUS alliance efforts have been to promote Rare Disease Day 2025 awreness, 1. **Video…
In 2023 a group from the aHUS community met with the FDA to talk to them about living with aHUS and…
Thank You to all Participants! View the completed Rare Disease Day 2024 project here http://bit.ly/RDday2025aHUS The background to the video is…