aHUS project for Rare Disease Day 2020
Atypical HUS: 2020 Rare Disease Day project by the aHUS Alliance. What do aHUS patients & family caregivers ‘see’ as needs for improvement or envision as future advancements for aHUS through 2020?
Atypical HUS: 2020 Rare Disease Day project by the aHUS Alliance. What do aHUS patients & family caregivers ‘see’ as needs for improvement or envision as future advancements for aHUS through 2020?
Article No. 302 7 December 2019 Rare Disease Day Looking Ahead: What Atypical HUS Community Sees for 2020 …
The reluctant advocate story continues: aHUSUK had received the Evaluation Consideration Document the week before Rare Disease Day 2014 and we…
The Zen of Living with a Rare Disease: a 4 step approach
Rare Disease Day 2019: Atypical HUS
What happens after the world annually marks Rare Disease Day on the last day of February? We carry on…
What does the term ‘rare disease advocacy’ mean to you? Patients and caregivers speaking up on social media or…
Everyone gets ill at some time don't they? Whether it is for example a cold, stomach upset or measles, people know…
Rare Disease Day will be marked around the world on 28 February 2018 and the aHUS Alliance is pleased to announce…