Atypical HUS Research: Feb 2025 Roundup
Since its inception in 2008, and celebrated annually on the last day of February, world Rare Disease Day has been an…
What’s New in aHUS Research – June 2024
As sometimes happens in life, things can arise as a group that makes people take a bit more notice than if…
Family Planning- aHUS Agenda Topic 14
Pregnancy is a common trigger of aHUS, this can impact on someone who is predisposed or related to someone predisposed to…
aHUS and the foetus
There are two involved in a pregnancy and birth the mother and the foetus /baby. The mother may or may not…
Can aHUS relapse in pregnancy?
Pregnancy is an important topic and has featured a lot on this website. Quite a few questions about it in the…
Ravulizumab is not quite eculizumab
Ravulizumab is becoming a treatment of choice for aHUS in countries where access is funded. Though eculizumab will still have a…
Pregnancy and aHUS
The topic of pregnancy and aHUS is included in the Global aHUS Patients’ Research Agenda. It has featured in articles on…
aHUS PREGNANCY COUNSELLING
Article No. 454 aHUS triggered by pregnancy is relatively common and accounts for 16% of female ( 18 to 45 years)…
“Good News” from talking about aHUS and Pregnancy
Earlier this year ,when the alliance was responding to the Rare Disease Day video questions , aHUS Patient Megan contacted the…