Informed about aHUS Patient Involvement
Involving patients in clinical studies design and conduct is ethical (Article 575). Involving patients as subjects of that study is ethically…
Patients Included: Reality or Unmet Goal? (#4: MYTHS of Rare Disease Advocacy)
The Last in the aHUS Alliance Four Part Series Patients Included: Reality or Unmet Goal? 4 MYTHS of Rare…
Pathways of Patient Engagement – 4 Myths of Rare Disease Advocacy: Part 3
4 MYTHS of Rare Disease Advocacy: Digging deeper into Common Misperceptions Pathways of Patient Engagement & Recruitment…
Health IT in the Exam Room
A doctor’s waiting area and exam rooms today look much like they appeared in the 1950s. Patients used to sit in…
Patient Engagement: A Reality or Merely Buzzwords?
Patients both desire and need to be involved at every level of their healthcare. Within the last decade there’s…