Adverse events – aHUS Agenda Topic 11
Although people’s experiences differ both treatment and long term effects of aHUS can be detected by patients. Patients have asked :…
AHUS patients without kidney involvement- who are they
Diagnosing aHUS patients without kidney involvement has always seemed paradoxical. TMA can affect capillaries in all organs but the “u” in…
Improving outcomes for “aHUS” patients, I was there.
As an aHUS advocate you can often be surprised by events. Nearly three months ago I received an e mail inviting…
Can a kidney transplant cure aHUS?
A kidney transplant used to be contraindicated for those predisposed to aHUS. Although it could have been successful for some depending…
CardioRenal Syndrome: The Relationship of Heart & Kidney Health
CardioRenal Syndrome: The Relationship between Heart & Kidney Function. Cardiorenal syndrome describes the group of medical characteristics (syndrome) which coexist between heart (cardio) and kidney function (renal). When either the kidneys or heart are not fulfilling their vital tasks, there can be a harmful and two-way interaction where decline in one of these major organs can seriously undermine function of the other. Does current patient education include these key points about CRS?
Transplant research answers that matter to aHUS patients
These days a kidney transplant may not feature much in the thoughts of new onset aHUS patients, most of them can…
aHUS & C3G: KDIGO Physician Reference Guide (Oct 2017)
Among rare kidney diseases, there are common clinical and patient issues. Meeting at the KDIGO Controversies Conference Common Elements in…
aHUS Diagnosis & Treatment – KDIGO Controversy Conference
The KDIGO Controversies Conference on Complement-Mediated Kidney Disease was held November 19-21 2015 in Barcelona Spain. KDIGO’s mission is to…