Advocacy punching above its aHUS weight
There is so much chat these days about what things should be like after the pandemic. Though it does seem at…
Being An aHUS Trialist
Article No. 419 16 February 2021 It is spring time in 2017. You feel very unwell, very poorly. It is thought…
aHUS Awareness Day 2018 – The Video
Once again, with the help of aHUS Patients and their families, the aHUS alliance has produced a video to spread the…
aHUS alliance video for aHUS Awareness Day 2016
Use the following link to see the work of aHUS patients, parents and carers from 17 countries around the world on…
Social Media and aHUS
No one can describe the aHUS journey better than atypical HUS patients and their caregivers, and who better to globally frame…
aHUS Voice in 2016
2016 aHUS Global Poll - Results aHUS Patient Global Voice In a multi-national collaboration of aHUS patient organizations around the world,…