expert centre Archives - aHUS Alliance Action

Challenges for the new aHUS year- “Bring it on”

Post author:ahusalliance
Post published:December 27, 2018
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Another year has ended for those affected by aHUS. For some sadly it would have proven to have been their last.…

Milan -The Final Stop but not the Full Stop

Post author:ahusalliance
Post published:July 20, 2018
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The alliance reached its final stop on its Whistle Stop tour of four aHUS Expert Centres in Europe. In…

Third Stop Bergamo Italy and another aHUS Expert Centre

Post author:ahusalliance
Post published:July 19, 2018
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Bergamo IT - Whistle-Stop Tour of 4 aHUS Centers in the EU: Visits to Three Nations in 6 days. The aHUS Alliance toured centers of aHUS expertise and research in July 2018. 3rd Stop: Mario Negri Institute, the Centro di Ricerche Cliniche per le Malattie Rare "Aldo e Cele Daccò"

Next stop Newcastle upon Tyne Hospital

Post author:ahusalliance
Post published:July 15, 2018
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Newcastle upon Tyne UK - Whistle-Stop Tour of 4 aHUS Centers in the EU: Visits to Three Nations in 6 days. The aHUS Alliance toured centers of aHUS expertise and research in July 2018. 2nd Stop: England, the National Renal Complement Therapeutics Centre (NRCTC) and with the National aHUS Service (NHS).

Whistle-stop Tour Begins

Post author:ahusalliance
Post published:July 14, 2018
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Paris FR - Whistle-Stop Tour of 4 aHUS Centers in the EU: Visits to Three Nations in 6 days. The aHUS Alliance toured centers of aHUS expertise and research in July 2018. 1st Stop: the Complement Diagnostics Laboratory led by Dr Veronique Fremeaux- Bacchi (HEGP).

A whistle stop tour of aHUS Expert Centres

Post author:ahusalliance
Post published:July 9, 2018
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Whistle-Stop Tour of 4 aHUS Centers in the EU: Visits to Three Nations in 6 days. "What is a Centre of Excellence?" lacks clarity, and is a concern of patients, families, and advocates. On behalf of atypical HUS advocates, the aHUS Alliance toured EU centers of aHUS expertise and research in July 2018.