Help needed to join the aHUS dots
Article No 395 25 November 2020 This was a call to action to the Global aHUS community.( Results to come) It…
Is Ravulizumab affordable for aHUS?
Article 388 16 October 2020 aHUS patients envisage a treatment that is affordable for all one day. That will be a…
aHUS transplants simplified
Article No. 387 13 October 2020 This website has featured several articles* about the topic of aHUS Transplants and their need…
Access to eculizumab
Article No. 375 6 September 2020 Earlier this year, aHUS alliance Global Action wrote to a number of contacts it has…
aHUS TRIALS WATCH 10
Article No. 331 8 March 2020 During his talk about potential complement inhibitors, Dr Richard Smith mentioned a ClinicalTrials.gov clinical trial…
Eculizumab- safe or not?
aHUS patients and carers raised the research topic : "Can the side effects of treatment using a complement inhibitor be distinguished…
Transplant research answers that matter to aHUS patients
These days a kidney transplant may not feature much in the thoughts of new onset aHUS patients, most of them can…
Atypical HUS in the Netherlands
Atypical HUS in the Netherlands - An aHUS Alliance interview with the Dutch research and clinical teams at Radboudumc, to include the broad importance of their CUREiHUS study and its potential impact for patients and physicians world wide.
NICE process begins it will soon be Christmas
In April 2013 we heard that NICE would not get to the evaluating and decision step until December 2013 , which…