USA
GLOBAL AHUS HIGHLIGHTS AND SCIENCE-BASED CONTENT
Are there 3000 aHUS patients in the USA
Health care and better estimating lead us to believe there are approaching 3000 aHUS patients in the USA who have survived…
aHUS and the foetus
There are two involved in a pregnancy and birth the mother and the foetus /baby. The mother may or may not…
aHUS meningococcal infection – vigilance essential
All aHUS patients know that when on complement inhibitor treatment they are at risk of meningococcal infection. Do they? Of course,…
RDD23 VIDEO – RESULTS REPORT
WWW.AHUSALLIANCEGLOBALACTION.ORG 18 March 2023 aHUS PATIENTS' VIEWS ON THE ATTRIBUTION OF ADVERSE EVENTS /SIDE EFFECTS EXPERIENCED DUE TO EITHER THEIR PRIMARY…
aHUS what is really happening?
Listening to some aHUS people on social media there is a sense that all are not satisfied with what is happening…
HST TMA Is It aHUS ?
- An Hematopoietic Stem Cell Transplant (HSCT) is a way to treat some malignant and benign diseases. The transplant replaces disease…
aHUS adverse events and patient reported outcomes
aHUS patients in clinical trials are monitored for adverse events and personal outcomes experience while on treatment. Adverse events have been…
Kamal is an aHUS Super Hero
Kamal Shah is a Director/Trustee of aHUS alliance Global Action. He first had aHUS over 25 years ago. It was triggered…
aHUS at ASN Kidney Week 2022
Early in November in the USA thoughts not just turn to elections but also to Kidney Week. The American Society of…