Adverse events – aHUS Agenda Topic 11
Although people’s experiences differ both treatment and long term effects of aHUS can be detected by patients. Patients have asked :…
TED Talk: Thriving Beyond Dialysis – A Journey of Hope and Resilience
What image comes to your mind when you hear the words ‘dialysis patient’? Most likely it’s not what you’ll see and…
4th Edition of Indian Dialysis Olympiad held in New Delhi, India
Who said dialysis patients cannot play a sport? Given good quality dialysis, dialysis patients can do everything that people with healthy…
Kamal is an aHUS Super Hero
Kamal Shah is a Director/Trustee of aHUS alliance Global Action. He first had aHUS over 25 years ago. It was triggered…
aHUS are we there yet?
Last summer, aHUS alliance’s Twitter Account featured the plight of a patient who, after a week in hospital, had been found…
Living with aHUS- what would you say?
If asked by health policy decision makers, and with a 500 words limit, how would you answer the question "how does…
Kidney Disease & Dental Health
Kidney Disease & Dental Health - aHUS Alliance Global Action looks at common topics for oral health and dental care, and provides an overview of what issue might be different or need special attention for people with kidney disease. A resource list is provided FMI.
COVID-19: Challenges faced by Dialysis Patients
Article No. 340 26 April 2020 COVID-19 has changed the world we live in. Even those who may not have…
Dialysis Diaries: Long Term Complications
The kidneys are wonder-organs. They do so many different things. They impact so many life-processes. It is impossible for individuals…