The KDIGO “aHUS” Guidelines have arrived
The long anticipated KDIGO Guidelines from the Controversies Conference held in Florence in September 2022 are now published. The report can…
The early days of aHUS Research (Before aHUS Endeavours Fade)
Global Action is privileged to present a second article in the series BEFORE aHUS ENDEAVOURS FADE. Celebrating the work of people…
Global aHUS at the Baltimore Conference
Global Action will be attending the Foundation’s Baltimore aHUS patients conference from the 28th to the 30th April. Here you will…
aHUS meningococcal infection – vigilance essential
All aHUS patients know that when on complement inhibitor treatment they are at risk of meningococcal infection. Do they? Of course,…
You don’t have aHUS any more
You don't have aHUS any more. Well you have aHUS but not for much longer. And no you won't be cured.…
Why aHUS for them and not me
Earlier this year in the series of articles following the Rare Disease Day video one featured a question by Elisabeth from…
Trial watch 16 -Factor D complement inhibitor.
One of the ways to find out which drugs have a potential for aHUS treatment is to look at trials for…
Autoantibodies cause aHUS
Another question from the RDD2022 video. This one from Harry in Hartlepool UK. This one is about anti factor h autoantibodies.…
Will there be a cure for aHUS one day?
Answers to the RDD2022 video continue. Samantha asks will there ever be a cure for aHUS? Crikey that is a difficult…