Trial Watch 20- ClinicalTrials.eu
The Global Action series “Trial Watch” has in the past covered several trials of treatments for aHUS patients and even some…
aHUS clinical trials are not that easy
To answer some of the questions in the aHUS Patients Research Agenda clinical trials will be needed. Take the issue of…
aHUS Trial Watch 12 (crovalimab update)
Article No. 432 7 May 2021 In the past week or so, the possible trial of a new technology for treating…
Advancements in mRNA – an approach to COVID-19 Vaccines
Pfizer and BioNTech press release 9 Nov 2020 announced positive announcement for their COVID-19 vaccine candidate. In the rapidly changing pandemic landscape, the aHUS Alliance provides compiled info & resources for background on mRNA and its potential approach to prevent disease.
Breaking Down Barriers in aHUS Clinical Trials
Break down in communication flows and fragmented outreach have built barriers for research and clinical trial enrollment regarding advancing new options for those with the rare disease atypical HUS (aHUS, or hemolytic uremic syndrome). The aHUS Alliance looks at current challenges, and potential pathways to explore and engage.
aHUS Trials Watch 2
Earlier this year the alliance began a watch on trials announced which relate to treatment of aHUS. Click here for the…