Strokes, DGKE , Sports & Recreation and aHUS questions
Three questions in the RDD22 video are each very specific but reflect the diverse impact of having had aHUS. Firstly one…
Questions about aHUS triggers
It is known that certain rare genetic variants, mutations, or markers, in components of the Complement System make some people susceptible…
Hormones and aHUS
Questions about hormones and aHUS in the RDD2022 video. It is a feature of aHUS that it becomes more common in…
YOU’VE GOT aHUS!
The third article in the series about the aHUS Diagnosis Process is published today. Rare Disease Day 2022 The article covers…
Help needed to join the aHUS dots
Article No 395 25 November 2020 This was a call to action to the Global aHUS community.( Results to come) It…
Ravulizumab costs less over a life time
Article No 394 23 November 2020 In an article on 16 October 2020 (No 388) aHUS Global Action derived a cost…
aHUS is….
Article No. 345 20 May 2020 COVID 19 lockdown does seem to give more time to think about things, so the…
Eculizumab- safe or not?
aHUS patients and carers raised the research topic : "Can the side effects of treatment using a complement inhibitor be distinguished…
aHUS Fatigue it matters to aHUS patients
aHUS is a disease in which oxygen carrying red blood cells are destroyed along with the kidneys too. The latter plays…
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