The ethics of aHUS treatment trials
When someone is affected by aHUS, the issue of it being a rare disease soon becomes apparent. The injustices felt by…
*Cancelled* Global aHUS “Town Hall” Meetings – Awareness Day 2022
Breaking news Breaking News Breaking News Due to unforeseen events the planned Town Hall meetings on aHUS awareness are cancelled. Sorry…
Does this genetic variant cause aHUS- Yes or No?
Are the predisposing genetic and triggering factors of aHUS fully catalogued and understood and will it help to know how variable…
TMAs and aHUS illustrated
Here is a most unusual clinical article from earlier this year. In Thrombotic microangiopathies : An Illustrated review the Abou-Ismail Group…
KDIGO – aHUS controversies and consensus
Six years ago, aHUS featured, along with another renal disease MPGN/C3G, in a controversies conference held by KDIGO (Kidney Disease Improving…
Trial watch 16 -Factor D complement inhibitor.
One of the ways to find out which drugs have a potential for aHUS treatment is to look at trials for…
A Community Advisory Board for aHUS
Today it can be announced that a Global aHUS Community Advisory Board (CAB) has been formed. What is a Community Advisory…
An aHUS diagnosis, lucky or what?
It is hard to believe that it will soon be two years since the aHUS Diagnosis Process project began. It began…
Panoramic view of vittà alta. Bergamo - Italy
3 weeks to aHUS Conference
The most important conference being held this year to feature aHUS, is the long awaited ISN Complement Mediated Renal Disease meeting…
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