AHUS patients without kidney involvement- who are they
Diagnosing aHUS patients without kidney involvement has always seemed paradoxical. TMA can affect capillaries in all organs but the “u” in…
Diagnosing aHUS patients without kidney involvement has always seemed paradoxical. TMA can affect capillaries in all organs but the “u” in…
Anyone who can get aHUS can get it any time. That makes sense the disease is just the product of a…
There are two involved in a pregnancy and birth the mother and the foetus /baby. The mother may or may not…
We all want aHUS patients to survive to old age, but what about those whose aHUS onset is later in life.…
Atypical HUS in Brazil - an interview with Pamela Notario of SHUa Brasil. (aHUS around the World: an aHUS Alliance Global Action series)
Involving patients in clinical studies design and conduct is ethical (Article 575). Involving patients as subjects of that study is ethically…
There have been moments and events in the past where someone whose endeavours make a significant difference for those who have…
In the past this website featured a series of blogs which covered the story of a patient advocacy organisation in the…
Written by an international team of aHUS patients and caregivers, the newsletter is an objective look at information and topics important…