How Do You Define Wellness if You’re Living with a Rare Disease or Chronic Illness?
What does the term ‘wellness’ mean if you’re a patient with a very rare disease or chronic illness? At…
The B of the aHUS Bang ends the Rare Disease Day Video
Rares of Romania asked the question " How can I understand in simple words what is happening in my body during this…
Thrombotic Microangiopathy Symposium in Boston – 24 Aug 2017
Thrombotic Microangiopathy Symposium: Through the Lens of aHUS 24 August 2017 in Boston Post-Event Update: LIVE BLOG: At…
Complement over and under Complementing
One of the simplest and clearest overview images to illustrate the Complement system is provided by an organisation called Euro Diagnostica…
aHUS Perspectives – an Interview with Dr Gianluigi Ardissino
The aHUS Alliance presents an informal interview with Dr. Gianluigi Ardissino, a clinician and researcher affiliated with Centro SEU in Milan, Italy, with insight into the interface of HUS and aHUS.
Why is Complement “Complement” ?
It is nearly 102 years since the death of Paul Ehrlich."So what? " you might say. But it was Ehrlich who…
Thinking aHUS gets there in the end
Like many with rare diseases getting a diagnosis is a major issue for aHUS patients. Although it is much speedier than…
aHUS Patient Care – the Need for Multidisciplinary Collaboration
Patients make appointments to see their primary care physician when a health issue arises, but often more complex cases merit…
aHUS Awareness Day: 24 September 2017
The aHUS Alliance, an international group of atypical HUS patient organizations and global advocates, announces its 3rd annual worldwide aHUS…