Why is Complement “Complement” ?
It is nearly 102 years since the death of Paul Ehrlich."So what? " you might say. But it was Ehrlich who…
Thinking aHUS gets there in the end
Like many with rare diseases getting a diagnosis is a major issue for aHUS patients. Although it is much speedier than…
aHUS Patient Care – the Need for Multidisciplinary Collaboration
Patients make appointments to see their primary care physician when a health issue arises, but often more complex cases merit…
aHUS Awareness Day: 24 September 2017
The aHUS Alliance, an international group of atypical HUS patient organizations and global advocates, announces its 3rd annual worldwide aHUS…
Perspectives in aHUS – Creating Opportunities & Meeting Challenges – Kamal D. Shah of India
Atypical HUS - Perspectives: An ongoing series from the aHUS Alliance that features varied views, people, advocacy, organizations, or efforts that can provide deeper understanding and insights into this rare disease.
Genetic tests – to know or not?
Genetics is very important to aHUS patients. aHUS is a very rare genetic diseases. aHUS patients get to know and understand…
Sleep Disturbances and Chronic Kidney Disease
Many people with chronic kidney disease experience sleep disturbances, apparently affecting patients of all ages and many clinical subtypes. Here we present a curated list of information about sleep disorders and kidney disease, providing excerpts to provide an overview of how sleep disorders may have potential to impact atypical HUS patients of various ages and with varied health histories.
Affordable Care makes sense everywhere
Access to heath care and treatment is a global concern for all those with chronic, life threatening heath conditions; probably even…
Research & Education: Keys to aHUS Answers
Especially with very rare diseases such as atypical HUS, medical research and education efforts are keys to unlocking information that’s critical…