Thinking More About aHUS Today.
So aHUS is a genetic disease caused by the aHUS gene. Many people talk about "the aHUS gene" as though it…
aHUS Day video- Thoughts for Doctors
The aHUS alliance has put out its aHUS Awareness Day video for 2017. 72 patients, or family members, from 18…
aHUS in ROMANIA – An Interview with Dr. Adrian Lungu
The aHUS Alliance is pleased to spotlight aHUS Romania (SHUa Romania) in this interview with Dr. Adrian Lungu, a…
aHUS Clinicians & Investigators
Atypical HUS is a very rare and complex disease. We thank those who collaborate on global aHUS research efforts, and extend…
“Good News” from talking about aHUS and Pregnancy
Earlier this year ,when the alliance was responding to the Rare Disease Day video questions , aHUS Patient Megan contacted the…
aHUS and the Red Balloon
It is just 25 days to aHUS Awareness Day 2017 and patients and patients' organsations around the world will be making…
#TMABoston Live
Post-Event Update:Presentations were videotaped, and appear on ourAtypical HUS Clinical Channel as the key asset of 2017 aHUS Awareness Day (24…
Patients as Partners
Patients are at the heart of healthcare. Patients are the recipients of medical care, and the participants in research and clinical…
Genetic testing for all? :Discuss
* To have genetic tests for all aHUS patients and families featured in the Rare Disease Day video ( see here).…