Transplantation and aHUS – a top topic
Transplantation of aHUS dialysis patients is a priority and top topic for the aHUS alliance. Transplantation of those with aHUS has…
Atypical HUS – Rare Disease Day 2018
Rare Disease Day will be marked around the world on 28 February 2018 and the aHUS Alliance is pleased to announce…
The aHUS Registry Explained (Part 1)
From its beginning the aHUS alliance’s website has featured articles about the aHUS Registry and the work it does (click here…
100 days to Rare Disease Day 2018
aHUS is rarer than rare In patient advocacy for rare diseases like aHUS there seems to be a background cycle to…
ASN studies address aHUS Research Agenda
Once again, the American Society of Nephrology’s (ASN) Kidney Week adds considerably to the knowledge of kidney disease in all its…
TMA 65 YEARS OLD TODAY
It was 65 years ago to day that Prof Symmers taught the world to say TMA. Prof Symmers, or Professor William…
Bucharest – Nephrology Course, Nov 17-18: IPNA & SEPNWG
International Nephrology Conference in BUCHAREST, Romania 17 & 18 Nov 2017 In the 1st conference of this type…
World Thrombosis Day 2017
Today is World Thrombosis Day. aHUS is the result of thrombosis in the small blood vessels – thrombotic microangiopathy, or TMA.…
aHUS & C3G: KDIGO Physician Reference Guide (Oct 2017)
Among rare kidney diseases, there are common clinical and patient issues. Meeting at the KDIGO Controversies Conference Common Elements in…