aHUS and TMA Study Centers
aHUS and TMA Study Centers An International List Compiled by the aHUS Alliance Atypical HUS is difficult…
aHUS and TMA Study Centers An International List Compiled by the aHUS Alliance Atypical HUS is difficult…
Twenty years ago today, in 1998, an article appeared in Kidney International , the Journal of the International Society of Nephrology…
Mr Kamal D. Shah, founder of Atypical HUS India and co-founder of India’s largest network of dialysis clinics, was…
An update on STOPECU ( NCT02574403) -the French Study of the withdrawal from eculizumab treatment which began in late 2015. ( click…
What happens after the world annually marks Rare Disease Day on the last day of February? We carry on…
What does the term ‘rare disease advocacy’ mean to you? Patients and caregivers speaking up on social media or…
It was little known, but Alexion decided years ago that it would reinvest 40% of any of its profits from the…
Everyone gets ill at some time don't they? Whether it is for example a cold, stomach upset or measles, people know…
The Last in the aHUS Alliance Four Part Series Patients Included: Reality or Unmet Goal? 4 MYTHS of Rare…