Voicing a Global aHUS Vision
Прекрасным будет тот день, когда наше осознание серьёзности заболевания аГУС/кТМА* поможет добиться того, что пациенты во всем мире смогут позволить себе…
What about aHUS?
Article No. 348 10 June 2020 A few weeks ago saw an anniversary of the launch of this website. Not a…
aHUS is….
Article No. 345 20 May 2020 COVID 19 lockdown does seem to give more time to think about things, so the…
They “get it ” when they can get it.
Article No. 332 14 March 2020 At the present incidence levels reported worldwide, Coronavirus 2019 (COVID-19) still fits definition of a…
Eculizumab- safe or not?
aHUS patients and carers raised the research topic : "Can the side effects of treatment using a complement inhibitor be distinguished…
Anti-FHs aHUS – a Disease within a Disease
The aHUS Patient community is becoming familiar with the fact that an incident of aHUS is a chance event which requires…
An aHUS Trigger- S. Pneumoniae
Most of the aHUS community are aware that aHUS is the result of predisposing genetic factors ,some known some not yet…
aHUS Fatigue it matters to aHUS patients
aHUS is a disease in which oxygen carrying red blood cells are destroyed along with the kidneys too. The latter plays…
No one said it would be easy
The reluctant advocate story continues: aHUSUK had received the Evaluation Consideration Document the week before Rare Disease Day 2014 and we…
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