Help needed to join the aHUS dots
Article No 395 25 November 2020 This was a call to action to the Global aHUS community.( Results to come) It…
Ravulizumab costs less over a life time
Article No 394 23 November 2020 In an article on 16 October 2020 (No 388) aHUS Global Action derived a cost…
The aHUS Diagnosis Process
Article No 389 27 October 2020 A process is a series of steps. Diagnosis is a process. A medical diagnosis is…
aHUS transplants simplified
Article No. 387 13 October 2020 This website has featured several articles* about the topic of aHUS Transplants and their need…
Access to eculizumab
Article No. 375 6 September 2020 Earlier this year, aHUS alliance Global Action wrote to a number of contacts it has…
The aHUS diagnosis challenge
Article No. 374 3 September 2020 For most aHUS patients a diagnosis of aHUS was hard to come by. For a…
Like an Agatha Christie Story!
Article No. 370 13 August 2020 Early this year, soon after it had completed its Rare Disease Day activities and COVID…
aHUS:Time is a great healer
Article No.356 17 July 2020 Two recent website articles delved into the data provided in an article by the Alexion aHUS…
aHUS health, well-being and work
Article No. 355 13 July 2020 Among the the topics included in the Global aHUS Patients' Research Agenda are the following…
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