The 2024 Global aHUS Poll
The 2024 Global aHUS Poll was closed to further responses on 18th July. It had been open for 6 weeks and…
Topics in aHUS Research – Sept 2022
Atypical HUS patients and family caregivers are direct consumers of medical information and research, as we have a vested interest in…
Atypical HUS Research: What’s New OCT 2021
We marked aHUS Awareness Day (24 Sept) with our own advocacy-based research, releasing the 1st report of data and insights from…
What became of the aHUS 130?
Article No. 446 14 July 2021 Eculizumab effectiveness and safety in the treatment of aHUS was established in five clinical trials…
Update: aHUS Diagnosis Process Study
Article No. 421 1 March 2021 There is no doubt that with the response by the aHUS Patient community to the…
Whistle-stop Tour Begins
Paris FR - Whistle-Stop Tour of 4 aHUS Centers in the EU: Visits to Three Nations in 6 days. The aHUS Alliance toured centers of aHUS expertise and research in July 2018. 1st Stop: the Complement Diagnostics Laboratory led by Dr Veronique Fremeaux- Bacchi (HEGP).
aHUS and TMA Study Centers
aHUS and TMA Study Centers An International List Compiled by the aHUS Alliance Atypical HUS is difficult…
Atypical HUS Facts – 2017 aHUS Alliance Fact Sheets
Looking for the latest 2017 facts and key research about the rare disease atypical hemolytic uremic syndrome (aHUS)? You’ve found…