aHUS health, well-being and work
Article No. 355 13 July 2020 Among the the topics included in the Global aHUS Patients' Research Agenda are the following…
aHUS Patient Fatigue
Article No. 354 4 July 2020 Earlier this year aHUS Global Action published a major four part report (see HERE)…
Global aHUS Registry: What’s it all About?
An article on FAQ regarding the aHUS global registry, including information gathered by atypical HUS patient advocates who represent the patient voice at the registry's Scientific Advisory Board meetings.
aHUS Patients have a value beyond the balance sheet
It was little known, but Alexion decided years ago that it would reinvest 40% of any of its profits from the…
The aHUS Registry Explained (Part 1)
From its beginning the aHUS alliance’s website has featured articles about the aHUS Registry and the work it does (click here…
Genetic tests – to know or not?
Genetics is very important to aHUS patients. aHUS is a very rare genetic diseases. aHUS patients get to know and understand…