aHUS as a rare disease 10 years ago
10 years ago global information about aHUS patients was more or less non existent. Vey sparse at best. An aHUS alliance…
aHUS website refreshed
Article No. 456 From today the aHUS alliance Global Action website has a new look. Just over five years since it…
Challenges for the new aHUS year- “Bring it on”
Another year has ended for those affected by aHUS. For some sadly it would have proven to have been their last.…
Atypical HUS – Rare Disease Day 2018
Rare Disease Day will be marked around the world on 28 February 2018 and the aHUS Alliance is pleased to announce…
aHUS “How To” – Find Atypical HUS Research
It can be a struggle to find information about medical conditions if you’ve been diagnosed with a rare disease, and…
Atypical HUS Facts – 2017 aHUS Alliance Fact Sheets
Looking for the latest 2017 facts and key research about the rare disease atypical hemolytic uremic syndrome (aHUS)? You’ve found…
AGENDA for TMA & aHUS Symposium in Boston 24 Aug 2017
Post-Event Update: Presentations were videotaped, and appear on YouTube on the aHUS Alliance Atypical HUS Clinical Channel .…
Genetic tests – to know or not?
Genetics is very important to aHUS patients. aHUS is a very rare genetic diseases. aHUS patients get to know and understand…
(archived 2019) -aHUS Alliance – Press Kit
Patients sharing their rare disease journey help bring new levels of understanding to researchers, industry, and the general public. Whether…