aHUS Awareness Day: 24 September 2017
The aHUS Alliance, an international group of atypical HUS patient organizations and global advocates, announces its 3rd annual worldwide aHUS…
Genetic tests – to know or not?
Genetics is very important to aHUS patients. aHUS is a very rare genetic diseases. aHUS patients get to know and understand…
(archived 2019) -aHUS Alliance – Press Kit
Patients sharing their rare disease journey help bring new levels of understanding to researchers, industry, and the general public. Whether…
aHUS alliance video for aHUS Awareness Day 2016
Use the following link to see the work of aHUS patients, parents and carers from 17 countries around the world on…
aHUS Awareness Day- 24 Sept Campaign Outreach
Images for world aHUS Awareness Day, in multiple languages. aHUS Awareness Day was created in 2015 by the aHUS Alliance and recognized annually on 24 September to rare awareness about this very rare disease.