Challenges for the new aHUS year- “Bring it on”
Another year has ended for those affected by aHUS. For some sadly it would have proven to have been their last.…
aHUS Awareness Day 2018 – The Video
Once again, with the help of aHUS Patients and their families, the aHUS alliance has produced a video to spread the…
Atypical HUS Facts – 2017 aHUS Alliance Fact Sheets
Looking for the latest 2017 facts and key research about the rare disease atypical hemolytic uremic syndrome (aHUS)? You’ve found…
Thinking More About aHUS Today.
So aHUS is a genetic disease caused by the aHUS gene. Many people talk about "the aHUS gene" as though it…
aHUS Day video- Thoughts for Doctors
The aHUS alliance has put out its aHUS Awareness Day video for 2017. 72 patients, or family members, from 18…
Videos about aHUS which make you think differently
Last month the aHUS alliance in partnership with Andrew Siedlecki , the USA National Coordinator for the aHUS Registry and other…
aHUS in Poland – United in Advocacy
We welcome the aHUS community in Poland as the newest of aHUS patient organizations uniting with other nations under…
aHUS and the Red Balloon
It is just 25 days to aHUS Awareness Day 2017 and patients and patients' organsations around the world will be making…
aHUS Awareness Day 2017 – Global Video Project
The 3rd international aHUS Awareness Day is just 2 months away. The world will join together on…