A website with an all angles approach to aHUS
Some time back aHUS Global Action gave a presentation to an aHUS patient conference and included the following slide about its…
Some time back aHUS Global Action gave a presentation to an aHUS patient conference and included the following slide about its…
Below is a “framework of ambitions” for those with rare diseases which appeared on Rare Disease Day 2024 (see link below…
In September last year a group of aHUS patients and parent/carers met with FDA and told them about aHUS. A summary…
Last year at this time Global Action published an article recording a conversation we had with ChatGPT ( an AI thing)…
About 4000 people around the world have had aHUS since the last aHUS awareness day. Many did not survive, they were…
Yes today 24th September 2023 is another aHUS awareness day, the 9th to date. Ever wonder who is behind this international…
Atypical HUS Fact Sheet: 2023 SEPT 2024 An informational resource from the global advocates at aHUS Alliance Global Action
It is hard to believe that it is nine years since aHUS alliance came up with the first aHUS Awareness Day…
Fund raising, which began when aHUSUK still existed, has been put to use to help fund research which may improve the…