aHUS alliance video for aHUS Awareness Day 2016
Use the following link to see the work of aHUS patients, parents and carers from 17 countries around the world on…
Patient Engagement: A Reality or Merely Buzzwords?
Patients both desire and need to be involved at every level of their healthcare. Within the last decade there’s…
Social Media and aHUS
No one can describe the aHUS journey better than atypical HUS patients and their caregivers, and who better to globally frame…
aHUS Voice in 2016
2016 aHUS Global Poll - Results aHUS Patient Global Voice In a multi-national collaboration of aHUS patient organizations around the world,…