People living with the rare disease atypical hemolytic uremic syndrome (atypical HUS or aHUS) face many challenges, including the difficulty in speaking with their healthcare professionals about symptoms…
It can be a struggle to find information about medical conditions if you’ve been diagnosed with a rare disease, and more so if you have multiple medical issues which…
The aHUS Alliance is pleased to spotlight aHUS Romania (SHUa Romania) in this interview with Dr. Adrian Lungu, a pediatric nephrologist from Bucharest Romania. Working at Fundeni Clinical…
Like many with rare diseases getting a diagnosis is a major issue for aHUS patients. Although it is much speedier than it used to be , getting a diagnosis is…
Brain Fog – Patients with Chronic Kidney Disease may experience memory issues, lack of ability to focus, and a general feeling of confusion or lack of mental clarity. Info & Research on this topic, from the aHUS Alliance.