As COVID-19 research, vaccines & availability, and national/regional response vary greatly by year and location, aHUS Alliance Global Action reminds you to check with your medical team for advice and…
Article No 326 5 March 2020 Medical research depends a lot on the collection of clinical data about patients from blood and other physical tests and measures to determine the …
Atypical HUS - RESOURCES About aHUS - General Info Info Centre Know aHUS: Know US aHUS PRESS KIT Image Gallery: Atypical HUS info & advocacy Atypical HUS 1.0 - to…
An article on FAQ regarding the aHUS global registry, including information gathered by atypical HUS patient advocates who represent the patient voice at the registry’s Scientific Advisory Board meetings.
As children with kidney disease grow to become adolescents, their medical care often changes from a pediatric to adult nephrology care setting – what common issues for teen patients surround this transition? A look at social, emotional, and medical aspects.
Article No 300 4 December 2019 In Part 1 the 95 year journey for aHUS to become in common use to describe our disease was sketched. The name has…
Alexion Pharmaceuticals holds corporate blood donation drive to mark aHUS Awareness Day, 24 Sept 2019.
Cleveland Clinic Children’s held its Rare Genetic Disease Symposium on 12 Sept 2019, with 3 aHUS-specific presentations to include the aHUS Alliance on the topic of ‘The Patients’ Perspective’.