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aHUS Day 2021 – Global Atypical HUS Project

24 Sept 2021 will mark the 7th aHUS Awareness Day. Learn more about the 2021 aHUS day project to showcase global patient experiences.

24 Sept 2021 – aHUS Awareness Day

The 7th annual aHUS Awareness Day will be marked on 24 September 2021. Created by the aHUS Alliance in 2015 to raise awareness about this life-threatening rare disease, the theme for this year’s aHUS Day is ‘United in Advocacy’. Details the 2021 global campaign to raising awareness of atypical HUS.

England recommends Ravulizumab for aHUS

Article No. 435 20 May 2021 There is a saying that "you can wait ages for a London bus but then two or three will come along together" It feels…

aHUS-Interpretation is Complex

Article No. 433 9 May 2021 Each day there are tweets about aHUS on Twitter. Mostly clinicians informing clinicians about new articles on the subject. Recently two tweets were noticed…

aHUS Trials Watch 11 ( Crovalimab)

Article No. 415 1 February 2021 In a recent article (article413) about research into why specifically monoclonal antibodies (mAb) work when blockading Complement Protein C5 , a novel mAb called…

aHUS and COVID19 vaccinations

Article No. 411 16 January 2021 COVID 19 dominates healthcare throughout the world. It dominates politics. It is in the news, it is in the social media , it is…

Atypical HUS: Not Like the Others

Patient involvement needs to be integrated across all areas of research and at early stages of planning clinical trials. When patient engagement is in the atypical HUS arena, what considerations make outreach a bit different for advocacy regarding this ultra rare disease?

aHUS Day 2020: Global Video Project

Article No. 367 8 August 2020 aHUS Awareness Day 2020 is less than 2 months away! The world will join together on September 24, 2020 to raise awareness for aHUS.…