Remission from aHUS is different from having been cured because there is still an uncertainty that aHUS can return. If that happens it is called a relapse. For a relapse…
A top topic if the number of questions relating to this issue in the RDD2022 Video are to go by. Drug developments are very important, most importantly to provide more…
Atipik Hemolitik Üremik Sendrom kısaca aHÜS, vücudumuzun bağışıklık sisteminin ana elemanlarından olan ana savunma sisteminin de ki bir parçanın regülasyon bozukluğu ile seyreden bir hastalıktır. Ana savunma sisteminde regülasyonun bozulması…
Can MedEd Encourage Specialists to Form TMA Teams? Tiny clots which form in the body’s small blood vessels - in brief, that’s how thrombotic microangiopathy can damage vital organs such…
If asked by health policy decision makers, and with a 500 words limit, how would you answer the question "how does aHUS affect the lives of people living with it…
aHUS Awareness Day 2021 - Answers to FAQs Finding information about any rare disease is challenging, and perhaps more so for an ultra rare disease such as atypical hemolytic uremic…
People with atypical HUS need urgent care during periods of disease activity, with treatment when needed for as long as needed. But how is such optimal care duration determined, and…
Article No. 449 28 July 2021 It is five years on since the article below about a little girl in India featured on our website. Ananya died waiting for a…