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Skin & Atypical HUS: Thrombotic Microangiopathy in aHUS

Skin involvement and thrombotic microangipathy: a consideration for atypical HUS patient care.

Choice of aHUS treatments

In making a choice aHUS patients’ preferences among treatments like eculizumab (and its biosimulars) , ravulizumab, crovalimab, and iptacopan it largely depend on factors such as dosing frequency, effectiveness, safety…

What’s New in aHUS Research: SEPT 2024 Edition

Every year since the first aHUS Awareness Day on 24 Sept 2015 we’ve attempted to shine a spotlight on atypical HUS research to help add more visibility to (and for)…

2024 aHUS Awareness Day: Theme for the aHUS 24 Sept Campaign

The theme for aHUS Awareness Day 2024 is ‘Mental Health’

AN aHUS PATIENT’S TREATMENT DISCONTINUATION MODEL

Without any further comment here is the model mentioned in the previous article ( which if you have not already seen can be read HERE ). Have a go at…

Atypical HUS & Travel

Atypical HUS & Travel: Planning a trip for work or pleasure? A look at minimizing risks while maximizing a smooth travel adventure.

Atypical HUS & Soft Tissue Examination?

As scientific discoveries advance, knowledge gaps slowly get smaller as well. This is true for any medical condition, but especially important for rare diseases like aHUS (atypical hemolytic uremic syndrome).…

Adverse events – aHUS Agenda Topic 11

Although people’s experiences differ both treatment and long term effects of aHUS can be detected by patients. Patients have asked : Can the side effects of treatment using a complement…

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