The video for aHUS awareness day 2024 was about mental health and having aHUS. Global Action has looked again at it to see what important insights it might reveal. Participant…
Mental Health: Types of Therapy | Ways to Nurture Mental Wellness | Mental Health Toolkit & Resources It’s a casual question people ask all the time, “How’s it going?”…
As children with kidney disease grow to become adolescents, their medical care often changes from a pediatric to adult nephrology care setting – what common issues for teen patients surround this transition? A look at social, emotional, and medical aspects.
Activity-based programs are a great for children to explore interest areas, learn new skills, and enjoy interactions with other children. What should coaches, camp directors, and youth program leaders know when activities include a child diagnosed with a rare disease like atypical HUS (aHUS)?
The aHUS Alliance recently conducted an interview with Dr Ralf Reski, a professor and researcher in the field of moss-made biopharmaceuticals. Of particular interest to us is Moss-FH,…
Exploring your Questions, Rare Disease Day 2017 Children living with the rare disease atypical HUS are first and foremost children. Despite sharing common medical challenges with adult aHUS patients, it’s…